INFORMATION FOR PDH-SUPPORTED RESEARCHERS
Precision Driven Health supports New Zealand researchers in empowering data-driven health.
As part of receiving funding from PDH for your research project, please be aware of the following ongoing requirements.
Provide documentation of ethical or regulatory approval and dataset access permissions
Your research funding is contingent upon receipt of appropriate approval to use data from human participants, which may require review from the Health and Disability Ethics Committees and/or an institutional ethics approval system. Please provide evidence of ethical approval, or evidence that approval is not required for your research, as appropriate.
Your research may also require access to restricted datasets. Please provide evidence of data access agreements which allow you to use restricted datasets, along with any conditions on the use of such datasets.
Follow a Data Management Plan, and complete a Privacy Impact Assessment
A Data Management Plan (DMP) describes how data will be created, accessed, stored, and used for a research project. Best practice in carrying out responsible and reproducible research includes preparing and using a DMP for each research project. DMPs are also a requirement of many funders (including PDH) and regulatory organisations (including New Zealand Health and Disability Ethics Committees).
PDH requires that your DMP be prepared and approved in the first stage of your project’s startup process.
A data management plan generally describes:
- what data will be created
- what policies will apply to the data
- who will own and have access to the data
- what data management practices will be used
- what facilities and equipment will be required
- who is responsible for these activities (i.e. if you are collaborating with others)
To create your Data Management Plan, PDH recommends use of an online tool such as DMPtool (from the US Univ of California system) and DMPonline (from the UK Digital Curation Centre) which provide templates and resources for populating a DMP.
If your project includes personal, identifiable information, you should also complete a Privacy Impact Assessment to help identify potential risks arising from collection, use, or handling of personal information. More information on PIAs is available on the NZ Privacy Commissioner’s website.
Obtain our approval prior to submitting abstracts and outputs, and prior to use of “Precision Driven Health”
PDH needs to review and approve any research outputs before abstracts are submitted, posters are printed, or talks are finalised. This is a check only on the commercial suitability of publishing the results – in no way restricting the publication from any scientific perspective.
We can do this commercial review quickly, but please don’t leave it to the last minute. Please send research outputs to the PDH Programme Manager for review.
We track the impact of Precision Driven Health on the research and healthcare communities, so please check with us about using “Precision Driven Health”, “PDH”, or our logo in your outputs.
Report research outputs and metrics to PDH
PDH reports regularly to stakeholders including its partner organisations and the Ministry of Business, Innovation and Employment on the research we’ve supported. Please track and send us details of your PDH-related activities as below.
Numerical metrics and supporting details:
- Peer-reviewed journal articles (upon acceptance)
- Books or chapters
- Published conference proceedings
- Keynote presentations
- Awards for science achievement
- Master’s or doctoral theses published
Descriptive information including metrics where available:
- Better outcomes for people and whanau, including return on investment for NZ health
- Health benefit stories showing NZ health improvement
- Health benefit stories showing Māori health improvement
- Enablement of individuals to manage and improve their health, including the number of consumers using personalised health tools developed through this research
- Development of NZ workforce capability and capacity for research, including:
- Number of PDH-supported researchers with academic positions in NZ
- Number of PDH-supported researchers with industry or DHB positions in NZ
- Number of PDH-supported students
- Number of PDH-supported Māori researchers
- Financial return to partner organisations, and products sold which utilise intellectual property from this research
Acknowledge our funding in publications
All publications or public statements must include a written acknowledgement of the provision of funding by PDH. The acknowledgment should be principally in one of the following forms, as appropriate:
This research was supported by funding from the Precision Driven Health research partnership. OR This research was supported by the Precision Driven Health research partnership.