Information Consent Best Practice

information consent best practice

Information Consent Best Practice

Data-driven healthcare will result in a “tsunami” of information from existing and new data sources including patient-generated data from genetic testing, consumer devices such as wearable fitness apps, and social media. How can clinicians and researchers utilize this data to help consumers achieve better health outcomes? How can consumers control who has access to their data? This research project examines legal and regulatory requirements around the consent to use health-related data in New Zealand, Australia, the European Union and the United States of America, and recommends changes and enhancements to existing practices.

Publications

  • Our blog post about this project (25 October 2017).
  • An article describing the project’s findings (arXiv).

Researchers

PI: Muhammad Rizwan Asghar – Senior Lecturer in the Department of Computer Science at The University of Auckland
Mirza Mansoor Baig – Research Team, Orion Health
Giovanni Russello – Cyber Security Foundry, The University of Auckland
TzeHowe Lee – Cyber Security Foundry, The University of Auckland
Ehsan Ullah – Clinical Quality and Safety Service, Auckland District Health Board
Gillian Dobbie – Cyber Security Foundry, The University of Auckland